What are your needs or requirements to the task group of the CHARGE Network?

What would be a “topic of the month” you would be interested in?

Possible topics of the month (to be extended):

  • Eating and drinking
  • Talking about CHARGE (diagnosis) to the child
  • Communication systems
  • Diagnosis shock(s) / Coping with
  • Facilities in general and for communication needs
  • School forms and classroom education
  • Early education
  • Relationship between parents and their child
  • Siblings
  • Grandparents
  • Friendships
  • Partnerships
  • Occupational possibilities
  • Interdisciplinary work with doctors and therapist
  • Therapies: Which are helpful and which not? Why?
  • Juristically aspects
  • Sensory systems
  • Endocrinological system and its effect for pedagogic
  • Behavior
  • Sports
  • Lifespan
  • Cochlea Implant
  • Likes and dislikes
  • Emotions
  • Assessment of development of language and communication skills
  • Social skills and transition to adulthood
  • Pain
  • Sleeping problems


Please send your thoughts to the contact person.