The CHARGE Network is an inclusive, interdisciplinary and worldwide network of Deafblind International particularly for professionals in the field of CHARGE Syndrome.
Its intention is to provide:
- an opportunity to share experiences
- resources (e.g. literature hints, website signposts/links) – this is in progress
- a discussion forum – with current questions/issues addressed in the form of a ‘topic of the month’ to structure the exchange – also in progress
- support for research (e.g. naming important questions; circulating research information/requests).
In addition to providing an opportunity for sharing knowledge and expertise amongst those professionals with experience in the field, the CHARGE Network also serves as a contact point for those professionals who are new to working to support individuals with CHARGE. The CHARGE Network does not intend to replicate existing CHARGE family support group websites.